I decided to start this blog after my son was diagnosed with food allergies. For the first seven months of his life he suffered with terrible eczema and after a trip to the ER we found out he is allergic to milk, soy, eggs, sesame and peanuts. As a parent of a child with food allergies it is a constant emotional rollercoaster. I have cried at grocery stores, at birthday parties and at night. He has had the Epi injection twice and spent too much time in the ER.

Current allergies: Milk, Eggs, Peanuts, Tree nuts
Outgrew: Sesame, Soy

Tuesday, December 11, 2012

Struggles

I have not posted in a long time because my life is ridiculously exhausting right now. I barely sleep because my crazy one year old thinks it's party time at 2 am.  As soon as I get home from work I have two boys competing for my hugs and sometimes won't leave my arms for hours (which I love!).  The only way I can even make dinner is if my husband gets home early, otherwise it's left over's for everyone. 

Dealing with Aiden's allergies is a daily struggle. He now keeps saying "I don't like food" over and over.  He only wants pasta and "butter" for breakfast, lunch and dinner.   He hits his face if we put something different in front of his mouth.  We have never forced him to eat anything he didn't want.  I'm not sure where this fear is coming from but I guess he understands there is something scary about food.

Aiden outgrew soy last year and we were so excited. He was able to have different types of treats (Oreos, graham crackers...).  But a few months ago he started complaining of tummy aches and he was getting a massive rash on his bum and in his arm creases.  We suspected a new allergy.  We started avoiding apples and some other things but the reactions kept on coming. Finally we realized it was soy, again. 

We requested a new RAST test.  I took him to his pediatrician so she can draw blood.  She is the only person that can actually find his vein and get blood from him. I gave her the form which included about 18 to 20 different things to test him for.  He put up a strong fight when the doctor was taking his blood but we made it.  The results came back and they only tested him for 3 things!  Apples, coconuts and peanuts.  I was beyond frustrated because he has to go through this again!  My husband took him back to the office to get more blood and a different doctor started to draw his blood.  She seemed annoyed and frustrated and told my husband to hold him really tight, as if he's choking him. In front of my son!  Then had a hard time finding his vein, when she finally did, she loudly exclaims that the vein exploded and that they are done.  So no blood and my son is now completely traumatized.  

Aiden is now scheduled for a skin test in two weeks. More needles. I  don't know how much more of this I (and Aiden) can take.  I am really annoyed at the doctor that was nasty.   I don't want to put Aiden through the trauma again.  We are now avoiding Milk, Soy, Eggs, Nuts, Tree Nuts without knowing if he outgrew anything.  I really hate food allergies. 

My two awesome boys
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1 comment:

  1. Susan H. @ The Food Allergy ChroniclesMarch 4, 2013 at 2:01 PM

    I hear your pain...life with my eldest son with mulitple food allergies 16 years ago was very similar. He outgrew the soy allergy but we have since added two more to the list...just recently, mustard and lamb. I only wish I had access to the great many blogs and information that is out there now. Hope is what got me through many a day. :)

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